Use and detailed metric properties of patient-reported outcome measures for rheumatoid arthritis: a systematic review covering two decades

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dc.authorid0000-0002-3478-5665
dc.contributor.authorKüçükdeveci, Ayşe A.
dc.contributor.authorElhan, A.H.
dc.contributor.authorErdoğan, B.D.
dc.contributor.authorKutlay, Şahin
dc.contributor.authorGökmen, Derya
dc.contributor.authorAteş, Can
dc.contributor.authorYüksel, Selcen
dc.contributor.authorLundgren-Nilsson, Asa
dc.contributor.authorEscorpizo, Reuben
dc.contributor.authorStucki, Gerold
dc.contributor.authorTennant, Alan
dc.contributor.authorConaghan, Philip G.
dc.date.accessioned2021-11-30T13:15:02Z
dc.date.available2021-11-30T13:15:02Z
dc.date.issued2021
dc.departmentTıp Fakültesi
dc.description.abstractThe importance of patient-reported outcome measures (PROMs) for rheumatoid arthritis (RA) clinical studies has been recognised for many years. The current study aims to describe the RA PROMs used over the past 20 years, and their performance metrics, to underpin appropriate tool selection. The study included a systematic search for PROMs that have been in use over the period 2000–2019, with detailed documentation of their psychometric properties, and a user-friendly presentation of the extensive evidence base. 125 PROMs were identified with psychometric evidence available. The domains of pain, fatigue, emotional functions, mobility, physical functioning and work dominated, with self-efficacy and coping as personal factors. Domains such as stiffness and sleep were poorly served. The most frequently used PROMs included the Health Assessment Questionnaire Disability Index (HAQ), the Short Form 36 (SF-36), the EuroQoL and the Modified HAQ which, between them, appeared in more than 3500 papers. Strong psychometric evidence was found for the HAQ, and the SF-36 Physical Functioning and Vitality (fatigue) domains. Otherwise, all domains except stiffness, sleep, education and health utility, had at least one PROM with moderate level of psychometric evidence. There is a broad range of PROMs for measuring RA outcomes, but the quality of psychometric evidence varies widely.
dc.identifier.doi10.1136/rmdopen-2021-001707
dc.identifier.endpage-en_US
dc.identifier.issn2056-5933
dc.identifier.issue2en_US
dc.identifier.pmid34376556
dc.identifier.scopusqualityQ1
dc.identifier.startpage-en_US
dc.identifier.urihttps:/dx.doi.org/10.1136/rmdopen-2021-001707
dc.identifier.urihttps://hdl.handle.net/20.500.12451/8845
dc.identifier.volume7en_US
dc.identifier.wosWOS:000684191100001
dc.identifier.wosqualityQ1
dc.indekslendigikaynakWeb of Science
dc.indekslendigikaynakScopus
dc.indekslendigikaynakPubMed
dc.language.isoen
dc.publisherBMJ Publishing Group
dc.relation.ispartofRMD Open
dc.relation.publicationcategoryMakale - Uluslararası Hakemli Dergi - Kurum Öğretim Elemanı
dc.rightsinfo:eu-repo/semantics/openAccess
dc.subjectArthritis
dc.subjectPatient Reported Outcome Measures
dc.subjectQualitative Research
dc.subjectRheumatoid
dc.titleUse and detailed metric properties of patient-reported outcome measures for rheumatoid arthritis: a systematic review covering two decades
dc.typeArticle

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