Engelli çocuğa sahip annelerin yaşam deneyimleri: Kabul süreçleri ve güçlüklerle baş etme durumları
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Tarih
2023
Yazarlar
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Yayıncı
Nevşehir Hacı Bektaş Veli Üniversitesi
Erişim Hakkı
info:eu-repo/semantics/openAccess
Özet
Araştırmanın amacı, engelli çocuğa sahip annelerin çocuklarının özel durumunu öğrendikleri anda verdikleri tepkileri, çevresel tutum ve yaklaşımları, tedavi sürecine dair aldıkları kararları, kabul aşamasında yaşananları, sorunlar ile başa çıkma yöntemlerini ve benzer durumda olan ailelere süreci tamamlamış olan annelerin önerilerini tespit etmektir. Bu amaç doğrultusunda, çalışma nitel araştırma yaklaşımlarından fenomenolojik desenle tasarlanmıştır. Çalışma grubu Aksaray’ da yaşamakta olan 10 engelli çocuk annesinden oluşmaktadır. Verilerinin toplanmasında yarı yapılandırılmış görüşme formu, elde edilen verilerin analizinde içerik analizi yöntemi kullanılmıştır. Verilerin analizine göre annelerin çocuklarının engel durumunu genellikle doğumdan sonra fark ettikleri, çocuklarının engel durumunu öğrendikleri ve öğrendikten sonra da yönlendirilme amaçlı ilk müracaat ettikleri birimin sağlık kurumları olduğu, tanı sonrası genellikle şok, derin üzüntü, inkâr ve isyan gibi tepkiler verdikleri, çevresel tutum yaklaşımların engel durumu ile başa çıkmalarını zorlaştırdığı, yaşadıkları süreç ile başa çıkmada eş ve yakın çevre desteğinin, dini inançların kolaylaştırıcı olduğu, benzer durumu yaşayan ailelere önerilerinin ise kabul sürecini hızlandırma yönünde olduğu sonucuna ulaşılmıştır. Bu sonuçlar ışığında tanı birimlerinin aile hassasiyetlerine özen gösteren moral ve motivasyonu artırıcı yaklaşım benimsemeleri, ailelere ise kapsayıcı bir takip ile yaşam boyu destek hizmeti sunulması önerilir.
This study investigates the reactions mothers gave when they found out that their children were disabled, the attitudes and approaches of their social circles, the decisions they made about the treatment, their experiences with the acceptance stage, their methods for coping with consequent problems, and their suggestions for families with a disabled member. In line with this purpose, this study is designed as qualitative research, and phenomenological research techniques were used. The study group consists of ten mothers who have disabled children living in Aksaray. A semi-structured interview form is used for data collection and content analysis was performed to analyze the obtained data. The analysis of the data shows that the mothers with disabled children generally found out about the disability of their children after birth and they first consulted a health facility, that their first reaction to the diagnosis was shock, profound sadness, denial, and rage against this fate, that attitudes and approaches of their social circles make it difficult for them to cope with the disability, that the support of their spouse and the close friends and family help them cope with the situation, and that they suggest families with a disabled member accept the situation quickly. In light of these findings, it is recommended that the individuals and units that make the diagnosis of the disability should adopt an approach that aims to strengthen the mothers' morale and motivation and that families of disabled individuals should be offered lifelong support services and comprehensive follow-ups.
This study investigates the reactions mothers gave when they found out that their children were disabled, the attitudes and approaches of their social circles, the decisions they made about the treatment, their experiences with the acceptance stage, their methods for coping with consequent problems, and their suggestions for families with a disabled member. In line with this purpose, this study is designed as qualitative research, and phenomenological research techniques were used. The study group consists of ten mothers who have disabled children living in Aksaray. A semi-structured interview form is used for data collection and content analysis was performed to analyze the obtained data. The analysis of the data shows that the mothers with disabled children generally found out about the disability of their children after birth and they first consulted a health facility, that their first reaction to the diagnosis was shock, profound sadness, denial, and rage against this fate, that attitudes and approaches of their social circles make it difficult for them to cope with the disability, that the support of their spouse and the close friends and family help them cope with the situation, and that they suggest families with a disabled member accept the situation quickly. In light of these findings, it is recommended that the individuals and units that make the diagnosis of the disability should adopt an approach that aims to strengthen the mothers' morale and motivation and that families of disabled individuals should be offered lifelong support services and comprehensive follow-ups.
Açıklama
Anahtar Kelimeler
Engel, Yaşam Deneyimi, Kabul Süreci, Disability, Life experience, Acceptance
Kaynak
Nevşehir Hacı Bektaş Veli Üniversitesi SBE Dergisi
WoS Q Değeri
Scopus Q Değeri
Cilt
13
Sayı
3
